The 2000 Yard Stare

 

 

 

 

     This page is dedicated to a fellow musician Tinnitus sufferer that chose to end her life shortly after composing her message of despair.    At one time, I had embedded a .wav file to give the reader a short idea as to what Tinnitus is about while reading this note.  It's a constant noise.  It's there without any controls to turn off, change the pitch or the volume.  There is no longer an opportunity to enjoy an absolute quiet and that single profound revelation after months of attempting to adjust was more than my friend could overcome.  Rather than an audio MIDI file to illustrate why she made a desperate choice, it's more appropriate that this tune serve in celebration of my friend's life while her words assist the reader in understanding the despair that accompanies this malady.  The 1st year of Tinnitus has taken too heavy a toll on too many of my friends and fellow sufferers.  My first year of profound revelations, tests, multiple exams and snake oil salesmen can't be described.  I think my friend would appreciate this little anonymous memorial with Allison Krause rather than anyone else having to listen to digital sounds that replicate the variety of Tinnitus sounds.

     After enduring my own 14 years with Tinnitus....I truly & deeply regret the loss of a good kindred soul....but find a bittersweet comfort in knowing that she has earned her peace.  

 

Do You Know Tinnitus?

 

I know this is hard to read against the background, it is supposed to make you struggle in order to understand.

 

The cloud follows me everywhere I go. A black rain cloud, complete with thunder. It never stops.

Have you ever looked into a puddle of water? What do you see? A clear reflection of the surroundings. A perfect mirror reflecting a perfect image. When I come along I bring my cloud.

Have you ever looked into a puddle in the rain? What do you see? Not much. The sounds in my head are my cloud. I take them everywhere. When I look into the puddle, it is raining. I can't see the image as you can.

If you toss a stone into the pool it makes a splash, followed by rings that spread themselves out on the surface of the water. If we are talking, and someone tosses something into the conversation, it makes splashes and rings in my puddle. I lose the image until the rings disappear and the puddle settles down to reveal... the rain. Mother used to talk about the soothing sound of the rain on a tin roof.  It never stops.  It never soothes my soul any longer.  My rain is just there.

Sleep is the only freedom. Upon awakening, however I am harshly reminded that I am still alive, and it is still raining.  Always raining.  It never stops...it is just there.

I don't want to be left out. I never did. But I am. If I try and stop the flow of the conversation to ask what she or he just said, I get in the way. I am always in the way.  I don't want to be in the way with my friends or associates.  They don't know; I smile, nod and share the same timing and facial expressions.  The ones that do know have forgotten.  I understand.  My cloud is not their cloud.  I don't wear a bandage for what ails me.  According to some, nothing ails me.  It's just the sound of rain.  It's the sound that I'll grow old with and the sound that takes my days apart, minute by minute.

Everyone is laughing hysterically. Not me. "What did he say?" The laughter continues, without me. Hurts. My friends want me to stop them and ask about what was said. Things happen too fast for that. I missed the fun part of the conversation, you see. The moment is already gone and I smile and laugh with the expressions that I see.

Telephone rings...hate it. I might miss something, and things go too fast for me to be sure I have it right. Sometimes I just give up and pretend I understand. I wonder what they think? Is she all there? Why did she say that? Forgive me. I don't always have the courage to ask you once more to repeat what you said.  I remember how I felt when I was asked to repeat to my elderly grandparents. 

I can't play the violin with my son. The E string and I are not friends. Everything above G sounds like G to me. The squealing in my head sounds like an orchestra of flutists warming up before the big concert. I can no longer enjoy the one thing I love more than almost all else: music.   My passion is now my plague. Rain. Kazoos. Distortion. Isolation...this is not the world that I want.

When the situation is favorable, the rain doesn't really bother me that much. I feel on top when I am sure I have been part of the conversation. I feel needed. I feel creative. I feel real again.

I Love E-mail from my Tinnitus friends. Please keep it coming!  Pax!!

   Read this note from Jenny again....just highlight by holding your left mouse button down and scrolling up

 

                

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

     

To read more about Tinnitus and Hypercussis please follow this link.

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